Monday, June 1, 2009

Comments from Google Site

I have a Google Site at which I am trying to topically arrange info on the cholinesterase inhibitor issue. (Yeah, I know I mention it in almost every blog post -- that's the main thing I'm interested in at the moment.)

Unfortunately it turns out that Google Sites does not support comments from anyone other than owners or collaborators. I found a forum thread that addresses this issue, and it basically says: Blogger is for comments; Sites isn't. Therefore this Blogger post is intended as a place where people can comment on my Sites pages.

Please comment here!

18 comments:

  1. Good afternoon,
    My mum was mistakenly diagnosed with Alzheimers. She has been taking REminyl xl for 7 years (In addition to nitrazepam and celexa) She does not have Alzheimers.
    We have reduced Benzo and ssri levels c 75% however we still have weak muscle and cognitive difficulties.
    She becomes very much weaker at the peak galantamine release.

    How do we get of it ????

    Steve
    +441257 474663
    +4477930 55399

    I will call back

    Stephenlaycock@btinternet.com

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  2. My son was poisoned by iodophenfos and dichlorvos at the age of 8, he is now 24.He used 3/4 litre if Nuvan Staykil on an ants nest. He is very ill and has been diagnosed with multiple allergies to foods and chemicals which can provoke a psychosis, Today sadly we had to take him to hospital as he has had a terrible reaction to eating paprika in a homemade paella. He is in the psychiatric ward tonight after suffering delusions. Despite diagnosis from world experts doctors do not know what to do. It is made worse because we had made a breakthrough by giving him 5HTP since the first of March and we had our son back. Any ideas or help welcome. We are in France but are English (Jersey) by birth. Any scientific papers to give the doctors please.

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  3. I have a daughter recently diagnosed with Celiac Disease. Her symptoms were neurological and some of them cleared up quickly, but the fatigue, brain fog, nausea and muscle tremors did not. After a 3 week elimination diet, it became clear that nightshades were the cause of these symptoms. It is harder than heck to get a medical doctor to believe this, however. I read your site with avid fascination, and am still digesting this info. Do you know of any doctors that are investigating this issue? Keep up the good work, and God bless you for posting this on the internet!
    Elizabeth in Auburn Hills, MI USA

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  4. Sorry it took so long for me to notice this. I hadn't checked back there for a while, and apparently it doesn't send me email when people comment.

    @Anne: I'm sorry to hear about your son's difficulties. This paper may be useful: http://www.neurology.org/cgi/content/abstract/52/7/1467 It's a case study of some people experiencing extreme responses to organophosphate exposure.

    Your son being hypersensitive to cholinesterase inhibitors/nightshade would potentially be consistent with what you describe. If that is the case, the only thing I have found that may help is to try to reduce exposure to cholinesterase inhibitors in the environment and diet. This is discussed at http://sites.google.com/site/annerwright/avoiding-cholinesterase-inhibitors

    @Elizabeth: Thank you for your kind words. I hope your daughter is improving now that you have figured about the nightshade. Unfortunately I have not yet found a doctor that is investigating this issue. I have found papers from some researchers, particularly Dr. Hermona Soreq, that look potentially relevant, but unfortunately they do not seem to be focusing on dietary exposure. I would love to correspond further with you and your daughter.

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  5. Oh, My, Goodness!!!!!
    After 15 years of fighting what we thought was hidden MSG, your site is beginning to shed light on what my husband, a 1991 Gulf War veteran experiences constantly. THANK YOU SO MUCH for all the info on CIs--I will be thoroughly researching what you've put out here, so we can finally have some answers!!! The only help I had ever found was the MSG Myth website, which is excellent. Yes, the only thing that keeps my husband out of what I call an "awake coma" is avoidance of absolutely everything you've listed in your articles--I'd never read or heard about Nightshade Sensitivity--his doctors,even a holistic doctor never mentioned it. Please keep up the work you do.
    Hannah, Birmingham, Alabama
    hannah@trawicks.com

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  6. Thank you for taking the time to post all of your research. You have given me great insight into my potato sensitivity. I learned to avoid potato many years ago because of the brain fog and heat racing (anxiety like) reaction to it. My grandmother had nightshade sensitivity and now it all makes perfect sense.

    Perhaps now I can minimize all those unexpected reactions. :)

    Blessings to you. Be Well,
    Bronwyn

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  7. I just found your info online. I was led to it by this article:
    http://www.scribd.com/doc/29418176/Microwaves-Imitate-Pesticides
    I think you will find this interesting. I don't have problems with chemicals, but I am sensitive to wireless. This article talks about cholinesterase inhibitors and how environmental EMF can inhibit cholinesterase. It's not just diet it or pesticides it seems. This means that those living with a lot of wireless around them (routers, cell phones, alarm systems, etc.) may get some relief from limiting personal exposure, something we all have some ability to do.
    I'll keep reading, looks like you've got a wealth of info. Thanks for your kind service to us all.
    Holland

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  8. This comment has been removed by the author.

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  9. Check out fasciculations for reference. Thank you for sharing this kind of information.

    More power to your blog!

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  10. My friend Anne asked that I let you know this since blogger isn't working for her.

    Please have her contact me thru my Greenchild Creations page, http://www.facebook.com/pages/Greenchild-Creations/107770265962471?ref=hnav easiest way for us to get in touch - if she writes "hi" on my GC wall then I should be able to message her thru Facebook.

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  11. Thanks miracle receiver. I did as you suggested and look forward to hearing from Anne.

    It was odd: initially there did not appear to be a way for me to post on her wall. Then after I clicked "Like" a box appeared that did let me write on her wall. I don't know if it's Facebook or Chrome that's acting strange.

    I had problems too trying to leave a comment on her blog using Chrome. I did get it to work using Safari. I wonder if she's experiencing the same problem.

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  12. In the process of withdrawing from St. John's Wort in 2009, I began to have problems with having too much acetylcholine so I stopped eating fish, eggs, milk, beans, most nuts. Now I can only eat a few things. My levels are still not back to normal yet. It is a struggle as I keep losing weight. Thanks for your site. I'll definitely quit broccoli - but I wonder is it the pesticides they put on the food or the food itself?

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  13. Hi Anne. Thank you so very much for sharing your knowlege of cholinesterase inhibitors. Hopefully you're still checking this page as I would be so appreciative if I could ask you some questions. Both my children have been diagnosed with Cholinesterase Deficiency inherited from their father and grandparents. My daughter's serum level is woefully low and I have been unsuccessful in obtaining any information at all from her doctors. They simply said "Do not under any circumstances let her come into contact with pesticides." Of course now that I've done some research I know that it goes much further than that. Would you mind if I emailed you or phoned with a few questions? I'll keep it as short and sweet as possible! Many thanks, Kath.
    flykathfly@gmail.com

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  14. Hi Anne,

    I stumbled upon Dr. Childers website after years of suffering from psoriatic arthritis. (When first diagnosed, fibromyalgia was a maybe.)

    At the time of finding his website, I was incapacitated with pain. I had put myself on a nutrient-dense plant based diet, and was flooding my body with nightshades and additional foods that contain solanine.

    I stopped ingesting all possible sources of solanine and my pain levels went from an 8 down to 2/3 in several days. I've been medication free for over a year, am still suffering with psor a, but have resumed a much higher level of functioning.

    I have been researching solanine in foods and can share some references with you. I was unable to find your Silverstone reference and would like to read that as well, if you could please advise.

    Two solanacea genus plants that are predominate in the health community these days are:
    ashwaghanda and gogi berries.

    I've cross referenced a few non-nightshades that containe solanine:
    apples, blueberries/huckleberries, artichoke and okra.

    Thanks for your excellent article,
    Jen
    jlsiskind@cox.net

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  15. I am suffering from pesticide toxicity. I would very much like to know where you got the information on how CIs affect the various body symptoms. This would be very helpful to me as I am preparing a lawsuit against the plant nursery next to my home and need scientific references.
    You may check out my website at NoPesticidesMoorpark dot com and email me at diana_slater at att.net.

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  16. I have had psoriasis for a long time and I had heard of the link between psoriasis and nightshades but never attempted to remove them from the diet. Well, and I found out a few years ago that I have low blood serum cholinesterase. But only yesterday did I discover that the nightshades have cholinesterase inhibitors in them. Now I will be A LOT more motivated to remove them from my diet. Thank you for your site. Reading about the negative effects of not having the acetylcholine breakdown properly made me feel like maybe that's why I've been inefficient at handling stress and muscular pain/discomfort. It helps to know there might be a real reason and it is not all in your head.

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  17. Just started a nightshade exclusion diet to see if it helps with neuromyotonia. In preparing for it, I've also identified caffeine (coffee, chocolate, green tea) as cholinesterase inhibitors so will be excluding them also.

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  18. Thank you for your informative article. I have recently discovered my sensitivity to all nightshade foods with inflammation and eczema in just my feet and all-over body joint pain. I am especially sensitive to potato. There are so many foods I have to avoid that it can be depressing. The alternative with the health problems is by far worse, though. I wanted to let you know that I have reacted to the non nightshade foods that contain solanine such as artichoke and sugar beets. I have a different kind of reaction to strawberries. I don't seem to have a problem with blueberries. I am wondering, if I eliminate all nightshades for a lengthy period of time, do you think my sensitivity could eventually subside? Thanks

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